Friday, January 8, 2010

Sam's new glasses...

Well, as most know Sam was diagnosed with superior oblique palsy before he was one year old. I am sure not many know what that is exactly, so I will explain it to the best of my ability... You have six muscles that extend from your optic nerve which surround the eye and hold them in place and also control the motion of the eye. One or more of those muscles on Sam's eyes are paralized, which means his eyes sit unevenly and don't move like they are supposed to causing him to see double vision, one on top of the other. Well, he had surgery just before he turned one in hopes to correct his eyes. What they did in surgery is they cut and repositioned some of the good muscles to compensate for the bad. The surgery was successful. His eyes looked great and the head tilt he had vanished. Well, in the past 8 months or so I have noticed his head tilt slowly returning and it is visably noticable to me that his eyes are no longer aligned like they should be. Some days the head tilt is worse than others because when he is tired or sick it seems he has less energy to control his eyes therefore the need to compensate by tilting his head is worse. Granted they aren't nearly as bad as they were prior to the surgery, but I know they will continue to worsen with time. We were told at the time of the surgery that it isn't a guarentee and that he would more than likely have to repeat the surgery during his lifetime, however they can't tell you how long each surgery will last before the eyes return to their original state. Could be a week, year, or even ten years... each person is different. Unfortunately for Sam the surgery was only effective for a little over a year before his eyes began to slowly return to there pre-surgery position. Being a mom, I struggle with the thought of having to put my baby through another surgery and see him hurt just to repeat it every couple years... breaks my heart. So, I took him into a different eye doctor and we have come up with a plan to try to prolong his need for surgery and possibly even eliminate the need for it ever again. He feels that Sam can gain some control back of the paralized muscles with vision therapy. Just like a stroke victim who becomes paralized, through therapy they are able to gain some control back. He said it is a neurological thing. However, being that Sam is only 2 1/2 he isn't quite old enough to follow direction as needed in order for therapy to be effective. So, until then we are going to put him in glasses. Now the lens' aren't like a normal lens to correct bad vision. They are called prism lens'. I don't know what that is exactly, but that is what they are. The only worry the doctor has is that the glasses act as a crutch and can (not often) make the condition worsen at a faster pace... Which means we would just have to replace his glasses more often until he is old enough for therapy... We have our fingers crossed thought that he will be able to get into vision therapy in the next year, being that he is quite the smart kid. So, these are the glasses we picked out, and I have heard NUMEROUS times now that he looks like Jonathan Lipnicki. You may recognize him from Jerry Maguire or Stewart Little. Personally I think Sam is cuter... What do you think?


3 comments:

The Circus said...

sam's way more cute. love him. I hope you can get this figuredo out for him. whatever we can do, we're here

Jaime said...

Obviously I said Sam was cuter, but seriously with the side by side...wow, the resemblance really is striking.

Justin and Tasha said...

He is cuter for sure !!!
The only thing different with the prism in the lens is the center vision of the lens is off centered to help pull his eye in to the correct position, I have seen a success in many you kids mostly if it is caught in an early age, and the vision therapy will help a ton as well, it will help strengthen the muscles. Best of luck to you !!!